The World Orphan Drug Congress organised by Terrapinn is a global, multi-stakeholder orphan drugs & rare diseases meeting that aims to provide attendees with a one-stop progressive scientific and strategic solution to the orphan drugs industry. The in-person event will take place in Sitges (Barcelona), Spain over four days from November 15th – 18th. Patient groups can ask…
EURORDIS Rare Diseases Europe is organising its 32nd Round Table of Companies (ERTC) workshop on the theme of « The impact of the EU regulatory network strategy 2020-2025 on the development of orphan medicines » aimed at bringing together participants spread across pharmaceutical, biotech and clinical research organisations (CRO), patient advocates, regulators, HTA bodies, healthcare professionals, researchers…
The Centre for Advanced Studies in Biomedical Innovation Law (CeBIL) at the University of Copenhagen and the University of Cambridge’s Centre for Law, Medicine and Life Sciences (LML) are jointly organising the 2021 Annual Symposium on the theme of Orphan Drug Innovation: Needs and Priorities. The event is targeted towards legal,economic, business, medical, and scientific…
The National Organization for Rare Diseases (NORD) is organising its annual NORD Summit 2021, one of the largest multi-stakeholder events in rare disease, bringing together rare disease community stakeholders, including rare disease experts and leaders from patient advocacy groups, government, industry, and academia to discuss the most current and critical topics related to rare diseases…
The European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) is organising a multi-stakeholder round table discussion on the theme of the future of rare diseases in Europe: Revision of the European Orphan & Paediatric Regulation and impact for the Nordic Rare Disease Community in the context of review of the European legislation on paediatric medicines (EC 1901/2006)…
The European Expert Group on Orphan Drug Incentives (OD Expert Group), in collaboration with media partner EURACTIV, is organising a webinar on how to address the unmet needs of rare disease patients by transforming the European Orphan Medicinal Products (OMP) landscape. The webinar will take place on June 11th from 14.30 – 16.00 CET. In this online event targeted towards the broad rare disease community,…
As part of its review of the Orphan and Paediatric Regulations announced in 2020, the European Commission (EC) has launched a public consultation for stakeholders such as patient organisations, healthcare professionals and providers, researchers, academics and representatives of the pharmaceutical industry, as well as members of the general public. Interested parties are invited to share…
Alexion’s Rare Conversations invites you for its third webinar (Take Three) on Research In Rare Diseases: Specificities and Needs. The webinar will take place on May 5, 2021 from 14.00 – 15.30 CET. The event, in cooperation with BPI, is aimed at discussing how the revision of the OMP Regulation (N° 141/20000), 20 years after…