Chan Zuckerberg Initiative hosts Networking Expo for Patient-Partnered Collaborations (PPC) for Rare Disease

Earlier this year, the Chan Zuckerberg Initiative (CZI) launched two Requests for Applications (RFA) for grant opportunities that will fund collaborative teams bringing together patient-led rare disease organizations and research teams for 4-year research projects aimed at advancing our understanding of the fundamental science of rare diseases. The Networking Expo is a two-day ideation and matchmaking workshop specifically designed…

Networking Support Scheme (NSS) event: European Dravet Syndrome Advanced Therapies Meeting (EDSAT)

A funded networking event titled « European Dravet Syndrome Advanced Therapies Meeting (EDSAT) » is being organised so that scientists can share first-hand information about their most recent advances in advanced therapies and Dravet syndrome research. In addition, attendees will learn from and discuss with guest industry regulatory and clinical experts in product and clinical development. This event has…

Networking event – The anti-IgLON5 disease: Challenges in diagnosis, treatment and pathogenesis of the disease

An EJP RD funded networking event on the rare neurological disease caused by anti-IgLON5 antibodies, discovered in 2014 by researchers from the Hospital Clínic-IDIBAPS is being organised in the context of the Networking Support Scheme (NSS) funding opportunity. The in person meeting will take place over two days on February 24th – 25th at the Esteve Auditorium of the Esther Koplowitz…

Networking Support Scheme (NSS) event on vascular liver diseases and associated complications

A funded networking event on vascular liver diseases and associated complications is being organised to give an update on current clinical and scientific concepts, as well as open questions in the field of vascular liver diseases. This workshop has received funding support from the EJP RD’s Networking Support Scheme (NSS) funding opportunity as part of the…

Networking Support Scheme (NSS) Event: 5th European Aniridia Conference

The 5th European Aniridia Conference is being organised to enable the sharing of scientific knowledge about the rare genetic eye condition aniridia to prevent sight loss and deal with aniridia’s effects. This workshop has received funding support from the EJP RD’s Networking Support Scheme (NSS) funding opportunity. The fully online conference will take place over two days from July 31st…

WANTED: Your View on Networking (Survey)

What are your wishes and needs for networking? And how is this changed due to the COVID-19 pandemic? We are eager to hear your view! Complete the survey here to help us improve the Networking Support Scheme, the EJP RD funding opportunity for networking. Please note: if you are a principal applicant or an evaluator…