Yesterday marked the official launch of Screen4Care which is a new EU Research Project focussed on accelerating diagnosis for Rare Disease patients through genetic newborn screening and advanced analysis methods such as machine learning and Artificial Intelligence. The project will run for a period of five years with a total budget of EUR 25 million provided by the Innovative Medicines Initiative (IMI 2 JU), a joint undertaking…
EURORDIS Rare Diseases Europe is organising its 32nd Round Table of Companies (ERTC) workshop on the theme of « The impact of the EU regulatory network strategy 2020-2025 on the development of orphan medicines » aimed at bringing together participants spread across pharmaceutical, biotech and clinical research organisations (CRO), patient advocates, regulators, HTA bodies, healthcare professionals, researchers…
EURORDIS is pleased to announce that nominations for the EURORDIS Black Pearl Awards 2022 are now open. The Awards are presented to patient advocates and organisations, policy makers, scientists, companies, and media in recognition of their exceptional achievements and outstanding commitment to the rare disease cause. NOMINATIONS: Just like every year, you can nominate any individual or organisation from anywhere in the world (including yourself and/or your own organisation) whose…