EJP RD is glad to announce that the last call for Research Mobility Fellowships will open on October, 3rd, 2022. The call aims to support PhD students, postdocs, and medical doctors in training to undertake scientific visits fostering specialist research training outside their countries of residence. The exchange can be carried out (1) within the same…
ERN eUROGEN, ERN ITHACA and ERN ERKNet are organising a webinar on July, 6th 2022, at 18:00 CEST. You can register here: https://register.gotowebinar.com/register/4452634388200656141 During this event, aimed at both healthcare professionals and patient organisations, all uro-nephrological and cardiological aspects of Williams-Beuren Syndrome will be discussed, including clinical scenarios.
ERN eUROGEN is organising a webinar on June, 29th 2022, at 18:00 CEST. This webinar will provide an overview of their activities and an update on the network’s most recent developments. You can register here : https://register.gotowebinar.com/register/4850315649781014540 The event will cover the development of the ERN eUROGEN registry, new features of the clinical patient management system (CPMS) and the possibilities available within…
The webinar on « Composite endpoints including patient relevant endpoints (Quality of Life) » is now available here In this webinar you will learn about: The procedures to combine multiple endpoints and its limitations The properties and the flexibility of the class of generalized pairwise comparison tests The potential advantages and disadvantages of designing a clinical trial…
ERICA aims to promote collaborative inter- ERNs research projects. It is therefore crucial to have a centralised location to announce any new project and search for collaborators. A specific web page has been created for this purpose on the ERICA website Research Wall (Please note that the current page only contains examples) It provides basic information about the…
EJP RD is glad to announce today (May 2nd) the opening of the call for Research Mobility Fellowships, which aims to support PhD students, postdocs and medical doctors in training to undertake scientific visits fostering specialist research training outside their countries of residence. The exchange can be carried out (1) within the same ERN (Full Members…
In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled « Modelling & Simulation: Research Methodologies for Small Populations in Rare Diseases » aimed at facilitating discussion and exchange of knowledge on the M&S methodologies and strategies as innovative and promising enough for facing complex multifactorial or rare diseases and conditions that require highly specialised treatments and resources is being organised…
In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “Functional exploration of genetic variants in cardiac diseases” aimed at presentation of functional explorations of variants of interest identified using Drosophila, C. elegans, Zebrafish and iPSc models to understand the molecular bases of genetic diseases, in particular heart and muscle diseases, is being organised by Philippe Chevalier of the Hospices Civils de…
In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled « Comprehensive gene profiling, molecular tumor board (MTB) and artificial intelligence in the diagnosis and treatment of patients with rare adult cancers » aimed at increasing physicians’ awareness on the possibilities of comprehensive genomic profiling in gene-guided planning of modern cancer treatment and addressing multidisciplinary aspects between specialists who are working…
The ERN Research Training Workshops funding opportunity is now open for applications until April 25th. The goal of the workshops is to train researchers and clinicians affiliated to ERN- Full Members or – Affiliated Partners in relevant topics on research in rare diseases. Training themes may include innovative research methodologies, diagnostic research topics, interdisciplinary treatment approaches, such as gene therapy and transplantation, etc. Moreover, the workshops will be…