The second run of the MOOC (Massive Open Online Course) “Diagnosing Rare Diseases: from the Clinic to Research and back” co-developed by the European Joint Programme on Rare Diseases, ERN Ithaca, ERN Genturis and the Foundation for Rare Diseases will start on October 4th. Registrations are free and open at this link. 1800 learners from 117 countries (40% outside Europe) joined…
The first ever European SCN8A & SCN2A Conference takes place at the University of Bonn (10th-11th September 2021) with a full virtual alternative. This event was organized in the context of the EJP RD Networking Support Scheme. Register here to attend in person Register here to attend online Speakers, agenda, and more information here: https://scn8a.eu/…
As part of the training activities proposed by the EJP RD, a 3-day training course titled “Pluripotent stem cells for rare disease research: banking, data, application” is being organised by Fraunhofer Institute for BiomedicalEngineering and Fondazione Telethon. The course aims at providing an overview on how human pluripotent stem cells can be used as research tools. The fully…
EJP RD is organising an integrative research and innovation strategy meeting on the theme of alignment of national rare disease strategies with the EJP RD targeted towards policy makers and persons involved in national, EU, and international rare diseases strategies. The fully online strategy meeting will take place on 8th July 2021 from 09:30 – 17:00 CET.…
What are your wishes and needs for networking? And how is this changed due to the COVID-19 pandemic? We are eager to hear your view! Complete the survey here to help us improve the Networking Support Scheme, the EJP RD funding opportunity for networking. Please note: if you are a principal applicant or an evaluator…
The European Joint Programme on Rare Diseases has launched an academic education course on rare diseases research topics. The development of the courses is coordinated by the Foundation for Rare Diseases, one of the EJP RD partners. The first course will address research issues related to diagnosis in the rare diseases context. More information Join…