Speaking in Brussels, Yann Le Cam, CEO of Eurordis, the European organisation for rare diseases, said, “We have gone from near ignorance to the recognition of rare diseases as a public health priority in Europe.” He added, “The landscape has changed drastically; expertise and innovative technologies that can potentially benefit people living with a rare disease have been developed.” He said, most EU Member States now have national rare disease strategies and connected specialised centres of care which was thanks in part to the establishment of European Reference Networks (ERNs), which were launched two years ago. He was speaking at an event, “Equal access to care for rare diseases,” organised by Friends of Europe, a leading Brussels-based think tank. To read the article here.
