The EJP RD – ERN Research Training Workshops funding opportunity OPEN until October 4th!

EJP RD News

The ERN Research Training Workshops funding opportunity is now open for applications until October 4th. The goal of the workshops is to train researchers and clinicians affiliated to ERN- Full  Members or – Affiliated Partners in relevant topics on research in rare diseases. Training themes may include innovative research methodologies, diagnostic research methodologies, interdisciplinary treatment approaches, such as gene therapy and transplantation, etc. Moreover, the workshops…

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MOOC Diagnosing Rare Diseases: from the Clinic to Research and back – Second run from October 4th!

EJP RD News

The second run of the MOOC (Massive Open Online Course) “Diagnosing Rare Diseases: from the Clinic to Research and back” co-developed by the European Joint Programme on Rare Diseases, ERN Ithaca, ERN Genturis and the Foundation for Rare Diseases will start on October 4th. Registrations are free and open at this link.  1800 learners from 117 countries (40% outside Europe) joined…

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Webinar: Leaving the darkness – tackling rare bone diseases

News

Economist Events and Ipsen are organising a webinar entitled “Leaving the darkness: Tackling rare bone diseases” featuring the participation of clinical specialists, health policy experts and patient groups. The webinar will take place on September 22, 2021 from 17.00 – 18.00 CET. The webinar will discuss the complex context of rare bone diseases and how care can be re-oriented to…

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EuropaBio Advanced Therapies webinar on EU case for equitable patient access to advanced therapies

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EuropaBio continues its Advanced Therapies webinar series of events, interviews, and publications with a virtual discussion on avenues for enhancing the access of EU patients to novel biotechnology-derived treatments titled “Treatment without borders: the EU case for equitable patient access to advanced therapies.” The webinar will take place on September 7, 2021 from 16.00 – 17.00 CET. The event will address whether EU…

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eureKARE announces 2021 Synthetic Biology competition (eureKAWARDS)

News

eureKARE, a company that invests in and supports European early-stage high-risk projects in the field of microbiome and synthetic biology has announced a competition between promising academic projects in synthetic biology across Europe. All European researchers (PhD, postdocs, senior researchers) are invited to participate to the competition. The winner of the competition will get free…

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CeBIL Annual Symposium 2021 – Orphan Drug Innovation: Needs and Priorities

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The Centre for Advanced Studies in Biomedical Innovation Law (CeBIL) at the University of Copenhagen and the University of Cambridge’s Centre for Law, Medicine and Life Sciences (LML) are jointly organising the 2021 Annual Symposium on the theme of Orphan Drug Innovation: Needs and Priorities. The event is targeted towards legal,economic, business, medical, and scientific…

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EPTRI and RESTORE Survey on paediatric Advanced Therapies Medicinal Products (ATMP) expertise

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Innovative techniques in the biomedical field (such as massive sequencing capacity, gene editing and tissue engineering) have resulted in the development of new unconventional drugs in the Advanced Therapy Medicinal Products (ATMPs) class. In this scenario, the European Paediatric Translational Research Infrastructure (EPTRI) and the EU-funded RESTORE project are collaborating to describe the map of competences available in the framework of the paediatric ATMP research in pan-European…

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Genopole Summer School 2021: Bioinformatics and Biostatistical Tools in Medical Genomics

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Genopole, the oldest and largest biocluster in France, is organising its Summer School 2021 on statistical methodologies and bioinformatics tools used in genomics and metagenomics in the context of a comprehensive approach to pathological mechanisms, targeted towards researchers, engineers, PhD students and post-docs involved in or planning to start their research project in the field of…

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Online event on Adult Life & Duchenne

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The World Duchenne Organization is organizing an online educational event on Adult Life & Duchenne. The free event on September 7 will be accessible for everybody via Zoom, and is available with live Spanish interpretation. Speakers include Prof. Ros Quinlivan, Dr. Jos Hendriksen, Nicoletta Madia, Elizabeth Vroom and Hlawulani Mkhabela. Apart from these, Duchenne adults from…

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