Networking event – The anti-IgLON5 disease: Challenges in diagnosis, treatment and pathogenesis of the disease

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An EJP RD funded networking event on the rare neurological disease caused by anti-IgLON5 antibodies, discovered in 2014 by researchers from the Hospital Clínic-IDIBAPS is being organised in the context of the Networking Support Scheme (NSS) funding opportunity. The in person meeting will take place over two days on February 24th – 25th at the Esteve Auditorium of the Esther Koplowitz…

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Commentary on 10 years of IRDiRC published in Nature Reviews Drug Discovery

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The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the publication of a commentary on 10 years of progress and challenges of IRDiRC in the prestigious journal Nature Reviews Drug Discovery. The article summarizes IRDiRC’s vision and goals and highlights its achievements and prospects after its first decade (2011–2021). The commentary has been authored by Lucia Monaco…

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Planning Committee named for the Third International Summit on Human Genome Editing

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Update: Third International Summit on Human Genome Editing postponed to 2023 The UK Royal Society, Academy of Medical Sciences, the US National Academies of Sciences and Medicine and UNESCO-The World Academy of Sciences for the advancement of science in developing countries (TWAS) are jointly organising the Third International Summit on Human Genome Editing in March…

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Call for Members: IRDiRC Task Force on Disregarded Rare Diseases (PLUTO PROJECT)

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The Therapies Scientific Committee of the International Rare Diseases Research Consortium (IRDiRC) is establishing a Task Force to characterize specific commonalities amongst a large group of “disregarded” rare diseases, with the potential secondary aims to identify removable roadblocks that may foster future research and development. The PLUTO project aims at using an integrated database search approach to: identify and classify…

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Last chance to register for EPTRI webinar on medical device development

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The European Paediatric Translational Research Infrastructure (EPTRI) is organising a webinar tailored to the development of medical devices (MD), titled “A magnifying glass in the world of the medical device development”. The webinar will take place on January 20th, 2022 from 11.00 CET. This webinar concludes the series of webinars “A journey in paediatric medical devices: from regulations to clinical case studies and patients involvement”. During the…

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Innovative Health Initiative (IHI) announces upcoming funding opportunities for 2022

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The Innovative Health Initiative (IHI), a European Union public-private partnership funding health research and innovation, has published draft information on upcoming funding opportunities in 2022 in order to give potential applicants additional time to find or build a consortium and prepare a strong proposal. The first call for proposals will be launched in the first…

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Networking Support Scheme (NSS) event on vascular liver diseases and associated complications

EJP RD News, News

A funded networking event on vascular liver diseases and associated complications is being organised to give an update on current clinical and scientific concepts, as well as open questions in the field of vascular liver diseases. This workshop has received funding support from the EJP RD’s Networking Support Scheme (NSS) funding opportunity as part of the…

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