The NGO Committee for Rare Diseases, Ågrenska Foundation, Rare Diseases International (RDI), and EURORDIS-Rare Diseases Europe are jointly organising their 2022 Global Rare Disease Day Event on the occasion of Rare Disease Day (February 28th) at the World Expo, Dubai. The event will take place from 07.30 – 13.30 CET (10.30 – 16.30 local time) at…
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The European Commission (EC) has launched the 2022 edition of its Horizon Impact Award, a prize dedicated to EU-funded projects whose results have created societal impact across Europe and beyond. Six winners will be chosen, and each will receive €25,000. The contest is open for applications until March 8th. The winners will be announced at…
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The UK Royal Society, Academy of Medical Sciences, the US National Academies of Sciences and Medicine and UNESCO-The World Academy of Sciences for the advancement of science in developing countries (TWAS) are jointly organising the Third International Summit on Human Genome Editing in March 2023, postponed from its original date of March 2022. The original dates of March 7th – 9th, 2022 are being used to…
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Scientify Research, a Swedish company providing an open, curated and structured research funding database that focuses on aggregating information on funding opportunities across several research areas, has published a curated list of grants and funding opportunities available in the field of rare diseases. The website also collates information about research funders, and users are allowed…
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In the framework of the French Presidency of the Council of the European Union (PFUE 2022), and under the high patronage of the French Ministry of Higher Education, Research and Innovation (MESRI), Inserm (French National Institute of Health and Medical Research) is organising a scientific symposium on Rare Diseases. The hybrid conference (in-person for specially invited attendees…
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The Chan Zuckerberg Initiative (CZI) is inviting applications from collaborative teams bringing together patient-led rare disease organisations and research teams for 4-year research projects aimed at advancing understanding of the fundamental science of rare diseases across two requests for applications (RFAs): The Patient-Partnered Collaborations for Single-Cell Analysis of Rare Inflammatory Pediatric Disease RFA aims to support the application of single-cell biology…
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EJP RD’s innovative Rare Diseases Research (RDR) Challenges call in partnership with Fondation Maladies Rare aims at facilitating and funding collaboration between industry, academia, SMEs, and patient organisations to solve specific research challenges in rare diseases. The first challenge issued under the RDR call was for the development of a non-invasive tool for measuring rare disease…
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The Ehlers-Danlos Society is organising the International Scientific Symposium on the Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD), a state-of-the-art meeting in which new research on clinical advances and the molecular and pathogenic mechanisms underlying EDS and related syndromes will be discussed. This hybrid event will take place in Rome, Italy (Fontana di Trevi Conference Centre)…
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In October 2021, the European Medicines Agency (EMA) and the Heads of Medicines Agencies (HMA) announced a pilot project to support the repurposing of medicines. To support not-for-profit organisations and academia ahead of the upcoming deadline for submission (February 28th), the EMA is hosting a « walk-in » clinic webinar on February 17th from 17.00 – 18.00 CET. The webinar will:…
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The Dravet Syndrome Foundation Spain (FSD), a non-profit organisation that promotes, encourages, and connects the world’s leading research centers for Dravet syndrome and related diseases, is announcing its upcoming conferences taking place in 2022, whose registration is now open at www.dravetconference.com. These in-person events will take place in Madrid, Spain over three days from March 31st – April 2nd. 1. Dravet Syndrome…
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