In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “Rhabdoid tumors in clinic and research: From basic biology to the patient […]
Read MoreThe General Assembly of TEDDY Network will be held online, within a hearing at the Council of Europe this July […]
Read MoreThe International Rare Diseases Research Consortium (IRDiRC) is pleased to announce today the release of its Rare Diseases Research Initiatives […]
Read MoreThe recording of Science’s webinar on innovation hubs as a viable option to address rare diseases, that took place on […]
Read MoreEJP RD is delighted to announce the launch on June 30th, 2022 of the Innovation Management Toolbox (IMT), a free-to-use […]
Read MoreThe World Duchenne Awareness Day, taking place each year on September 7th, is the official campaign to raise awareness for […]
Read MoreERN eUROGEN, ERN ITHACA and ERN ERKNet are organising a webinar on July, 6th 2022, at 18:00 CEST. You can […]
Read MoreERN eUROGEN is organising a webinar on June, 29th 2022, at 18:00 CEST. This webinar will provide an overview of their […]
Read MoreThe webinar on “Composite endpoints including patient relevant endpoints (Quality of Life)” is now available here In this webinar you […]
Read MoreGelareh Emami, a PhD student at the Department of Health Management at Scuola Superiore Sant’Anna, under the supervision of Prof. Giuseppe […]
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