Check out the #ECRD2024 comic strip showcasing major milestones from the 1st ECRD to today and beyond!At labor #7, we […]
Read MoreWelcome to the pinnacle event in rare diseases research – the RE(ACT) Congress and IRDiRC Conference 2025, held jointly by […]
Read More🚀 Our third EJP RD MOOC on “Health Data Ethics & Regulatory Frameworks in Rare Disease Research” is launching today! Join […]
Read MoreToday we release our latest online course on “Interim Analysis, Adaptations, and Master Protocols”!In this lecture, we will focus on […]
Read MoreYou can now watch the insightful video featuring Johan De Graaf, a Patient Expert. In his video, Johan emphasizes the […]
Read MoreThe registration deadline for the Final EJP RD Conference has been extended to May 22nd, 2024!Join us online on May […]
Read MoreThe video of Alex Sverdlov’s course on “Early Phase Trial designs in Rare diseases” is now live! Dive into the […]
Read MoreAlessandro Prigione, coordinator of the project CureMILS funded under EJP RD’s Joint Transnational Calls 2020, discusses their work on Leigh syndrome […]
Read MoreWe’re thrilled to announce the release of our second intermediate course: “Bayesian Thinking and Methods” by Prof. Emmanuel Lesaffre. Dive […]
Read MoreThe International Rare Diseases Research Consortium’s (IRDiRC) Regulatory Scientific Committee (RSC) has two openings for new members who are from […]
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