The EJP RD Joint Transnational Call, a funding opportunity for research projects, will be launched on December 12th. The aim of the funding opportunity is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with expected impact to use the…
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On 15 and 16 November 2022 the European Commission will launch its first European Partnership Stakeholder Forum. The Forum focuses on the review of the first year of partnerships and, in particular, how they can contribute to the twin green and digital transitions, as well as increasing Europe’s resilience. EJP RD Coordinator Daria Julkowska will…
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In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “Epidermolysis bullosa: from genes to translation into therapies” is being organized by Prof. Dr. Cristina Has of the University Hospital Freiburg. The in-person event will take place on 23-24 March 2023 in CIBSS – Centre for Integrative Biological Signalling Studies in Freiburg, Germany. Registration is open here, and closes…
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We are thrilled to share with you the new EJP RD video produced for ASHG TV which focuses on the value chain: from diagnosis to development of therapies for Rare Diseases. Together, EJP RD Members Dr. Daria Julkowska, Dr. Sonja van Weely, Dr. Ralph Schuster, Anton Ussi, Prof. Franz Schaefer, Dr. Ana Rath, Prof. Rima…
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Fondazione Gianni Benzi Onlus is jointly organising with Università degli Studi di Bari Aldo Moro the XV Foresight Training Course “Boosting research and innovation in a changing regulatory framework”. It will run as a hybrid meeting on 15-16 December 2022 in Bari, Italy at Sala Leogrande (Ex Palazzo delle Poste, piazza Cesare Battisti 1). The…
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In addition to the Orphan Products Grants Program that the Office of Orphan Products Development (OOPD) currently administers, a new grant program was established this year by the Accelerating Access to Critical Therapies for Amyotrophic Lateral Sclerosis Act (ACT for ALS) named the FDA Rare Neurodegenerative Disease Grant Program. This new program will be administered…
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The upcoming EJP RD training entitled Biobanking in rare diseases: the Poland experience is now open for registration. The 2-day training will be held on November 28-29th online. The training is dedicated to scientists of biomedical sector who want to learn about biobanking standards in rare disease research.Registration is open until November 10th. Register and…
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We are glad to announce the launch of the new MOOC entitled “Introduction to translational research for Rare Diseases” will be available. On this five-week course from the European Joint Programme on Rare Diseases, you’ll explore the therapeutic development process from the unique perspective of rare diseases. You will follow the journey from discovery to…
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On October 17th, a new MOOC entitled “Introduction to translational research for Rare Diseases” will be available. On this five-week course from the European Joint Programme on Rare Diseases, you’ll explore the therapeutic development process from the unique perspective of rare diseases. You will follow the journey from discovery to approved treatment, learn how therapeutic…
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Registration is now open to the yearly 5-day course on “Translational Medicine Explained (TMex) ” on 13-17 February 2023 in Barcelona. The course is intended for PhD/MD students, postdocs and other young scientists who are involved in biomedical research and want to learn more about Translational Medicine. The TMex (“Translational Medicine Explained)” Winter School consists of an introductory e…
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