SAVE THE DATE: 4th eNMD Congress
The 4th eNMD conference will be held on 19-21 October 2023 in Munich. Visit the event’s website to get updated on information that will be incoming: https://enmd-neuromuscular.eu
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European Union (EU) Health Summit – Rare Diseases Moonshot launch
Join us on 8th December for the European Health Summit that will take place in Brussels (Belgium) and online to find out more about our journey towards a Rare Disease Moonshot. Online registration is open here: https://lnkd.in/eCGr3ZmX EJP RD Coordinator, Daria Julkowska, will be part of the panel “Building a sustainable R&D ecosystem for rare diseases” along with other keynote speakers. This panel will provide the opportunity…
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EJP RD – ERN Workshop: RARE TOGETHER
In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “EJP RD – ERN Workshop: RARE TOGETHER” is being organized by Dr Rosanne Smits from Radboud University Medical Center. The in-person event will take place on 8-9 May 2023 at Van der Valk Hotel in Nijmegen-Lent, The Netherlands. Registration is open here, and closes on February 1st. The workshop, open to all research levels…
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Survey for SRIA in support for the EP PerMed
The European Partnership for Personalised Medicine (EP PerMed) Drafting Group, representing the European Members States group, is launching an open consultation to validate and receive input for the Strategic Research and Innovation Agenda in support for the European Partnership for Personalised Medicine, EP PerMed. The outcome of the online consultation will be considered for the SRIA finalisation (02/2023)…
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European Partnership Stakeholder Forum Video Recordings
On 15 and 16 November 2022 the European Commission launched together with ERA-LEARN its first European Partnership Stakeholder Forum. The Forum focused on the review of the first year of partnerships and, in particular, how they can contribute to the twin green and digital transitions, as well as increasing Europe’s resilience. EJP RD Coordinator Daria…
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EJP RD – ERN Workshop: New Therapeutical Approaches for Inherited Retinal Dystrophies
In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “EJP RD – ERN Workshop: New Therapeutical Approaches for Inherited Retinal Dystrophies” is being organized by Dr Regina Rodrigo. The in-person event will take place on 27-28 March 2023 at CIPF – Príncipe Felipe Research Center, Eduardo Primo Yúfera, 3, 46012, Valencia, Spain. Registration is open here, and closes…
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International call for research proposals on rare cancer drug development
Five European anti-cancer charities (Fundación científica Asociación Española Contra el Cáncer (Spain); The Anticancer Fund (Belgium); Fondation ARC (France); Kom op tegen Kanker (Belgium); Dutch Cancer Society (The Netherlands)) are joining forces to stimulate international research on rare cancer drug development. The focus of this joint international call, the ATTRACT-Call, is on late phase (2/3) clinical trials on rare cancer drugs.…
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Join IRDiRC’s Therapies Scientific Committee!
IRDiRC’s Therapies Scientific Committee (TSC) would like to broaden the committee membership, to represent the worldwide rare diseases therapies community in its full width, from early innovation towards regulatory approval and therapeutic support of patients. As such, the TSC has three openings for new members, specifically encouraging participants from the following regions: Africa, Asia, Australasia or South America.…
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Fostering innovation for rare diseases in Europe: Chiesi supports the RDR Challenges Call
Chiesi has published an article showcasing support towards EJP RD’s RDR Challenges Call. The innovative “Rare Diseases Research (RDR) Challenges” call aims at facilitate and fund collaboration between industry, academia, SMEs, and patient organizations to solve specific research challenges in rare diseases. « As B-Corp certified pharmaceutical company, Chiesi invests in multi-stakeholder collaboration as a crucial pillar…
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Submit a poster for Duchenne Patient Academy 2022
Do you have an innovative or breakthrough project related to the Duchenne field that you wish to share with the global community? Submit an E-Poster abstract for the 2022 edition of Duchenne Patient Academy. Selected authors will be invited to present their E-Poster during the event taking place on December 1. The poster session will…
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