DATE & VENUE The conference will be a hybrid event (in person and online streaming).Where: Ljubljana, Slovenia, Hotel SlonWhen: 1st – 2nd June 2023 (CEST) SCOPE The Kleefstra Syndrome Scientific Conference 2023: “Moving towards the uptake and use of Artificial Intelligence (AI) in research and clinical work” focuses on Kleefstra syndrome, a rare genetic disorder with app. 1000 diagnosed patients worldwide. Due…
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GA4GH 11th Plenary brings together organisations and stakeholders from the genomics and health community for keynotes, talks, and workshops focused on genomic and clinical data sharing issues that pervade diverse industries, disciplines, and communities. Attend the event in San Francisco, USA. Register now here for the hybrid conference from 19 to 22 September. The first two…
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On 27 April 2023, ERA-LEARN organised an online event focused on the implementation of co-funded European Partnerships. This event includes coordinators and beneficiaries of co-funded European Partnerships who are looking for additional support in implementing their projects. The Q&A summary, slides and video are now available here.
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Apply now to join the 9th Rare Disease Summer School organized by ITINERARE, a recently established University Research Priority Program of the University of Zurich focusing on “Innovative Therapies in Rare Diseases”. The Summer School will take place at the Kartause Ittingen, Warth (Canton Thurgau) close to Zurich from July 04th to 07th, 2023. Please refer to the website for more information on the ITINERARE Rare Disease Summer…
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On 27 April 2023, ERA-LEARN is organizing an online event focused on the implementation of co-funded European Partnerships. The target audience for this event includes coordinators and beneficiaries of co-funded European Partnerships who are looking for additional support in implementing their projects. Main agenda items: Welcome and Introduction Status of European Partnerships Governance and implementation of co-funded European Partnerships…
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The World Health Organization (WHO) is seeking experts to serve as members of the Strategic Advisory Group of Experts on In Vitro Diagnostics (SAGE IVD). This “Call for Experts” provides information about the advisory group in question, the expert profiles being sought, the process to express interest, and the process of selection. If interested, please…
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Attention teenagers aged 12-18 with an interest in health, biomedical research, healthcare, and children’s rights! Join our upcoming workshop to become an active contributor in scientific research and improve healthcare services for all patients. 21-23 June 2023Barcelona, SpainDeadline to show interest: 14 May 2023 Learn about drug development, children’s rights, and patient-centered approaches through case…
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The new session of the MOOC « From Lab to Clinic: Translational Research for Rare Diseases » has been launched today. Learn the fascinating journey of translating research into treatments for Rare Diseases. With expert guidance, explore drug discovery, clinical trials, regulatory approval, and challenges in this unique field. Gain insights from patients and experts, understand trial…
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Exciting news for researchers, clinicians, and healthcare professionals! The eagerly anticipated MOOC, « From Lab to Clinic: Translational Research for Rare Diseases » is launching on April 17th. This 5-week course offers a unique opportunity to gain insight into the issues, challenges, and opportunities in translating research into treatments for rare disease patients. With just 4 hours…
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A new EJP RD training course called « ERN Biological Samples in Rare Diseases Research » is set to take place on June 12th in Madrid, Spain, aimed at biomedical researchers, medical professionals, and biobank managers. The course will cover the path to follow for exploiting the high value of the ERNs (European Reference Networks) biological samples…
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