The Professional Society for Health Economics and Outcomes Research (ISPOR) is organising a webinar entitled “Health Preference Research in the Context of Gene Therapy in Rare Diseases” that will be limited to 1000 registered participants on a first-come, first-served basis.
The webinar will take place on September 27, 2021 from 16.00 – 17.00 CET.
This webinar will present the value of health preference research to study the promise of gene therapy in rare diseases, through three short presentations in which the speakers will present their respective studies on gene therapy in Duchenne muscular dystrophy, spinal muscular atrophy (SMA), and hemophilia. This will be followed by a moderated discussion on the specific value of health preference research in this context, and the interpretation and implications of the outcomes.
More information and registration here: https://www.ispor.org/conferences-education/calendar/event/2021/09/27/default-calendar/health-preference-research-in-the-context-of-gene-therapy-in-rare-diseases
