On 17th May, EURORDIS launched a Position Paper on ‘Achieving Holistic Person-Centred Care to Leave No One Behind’, at the EURORDIS Membership Meeting in Bucharest.
In this position paper EURORDIS put forward their ambition to have holistic care provided to the 30 million people living with a rare disease in Europe, and their families, by 2030. Their ambition is to see people living with a rare disease integrated in a society that indeed leaves no one behind.
Read the paper and the executive summary at www.eurordis.org/carepaper(short version available also in ES, DE, FR, IT, PT, RU).