You don’t have any plans for this weekend? Take a camera with you and send us a picture that captures how is daily life when you live with a rare disease! #EURORDISAwards2021 Send your picture here: https://blackpearl.eurordis.org/photo-award/ Auteur : Onakoy Tanguy Navigation articlePrécédent Article précédent :EURORDIS Rare2030 Final Conference and 10th annual Black Pearl AwardSuivantArticle suivant :Register to the Information Webinar for the JTC2021Related PostsNew EU guidance published!25 juin 2024Join the paediatric Patient Expert Group (PEG)!21 juin 2024European Conference on Rare Diseases Calls for Action in Open Letter to European Commission3 juin 202412 LABOURS OF ECRD – ACTION WITHIN REACH: A RARE DISEASE JOURNEY IN EUROPE15 mai 2024IRDiRC Nomination Call – Regulatory Scientific Committee (RSC)20 mars 202413th EURORDIS Black Pearl Awards: On-demand ceremony available13 mars 2024
European Conference on Rare Diseases Calls for Action in Open Letter to European Commission3 juin 2024