To always challenge and improve the relevance and quality of our training, the EURORDIS Open Academy has launched a survey open to patient advocates and researchers to learn more about their needs, such as their reasons for engaging in training, main topics of interest, and roadblocks that would prevent them from attending a training event.
The survey will be open from 17th – 31st May.
The target is rare disease patient advocates and researchers from any age group and country, not limited to Europe.
