AFM-Telethon is pleased to announce the launch of its first international call for proposals for Translational Research Projects on « A single therapeutic product for several mitochondrial disorders ». The MitoNice Congress, organized in September 2022 by the AFM-Telethon along with the 7 th International Myology Congress, highlighted that mitochondrial medicine has moved from the…
ERN eUROGEN and ERNICA are organising a 1-hour webinar entitled « Primary Obstructive Megaureter (POM): Predictors of Success and Failure after Balloon Dilatation » on February 22nd, 2023 at 18:00 CET. Registration is open here In this webinar aimed at healthcare professionals, Dr Sonia Pérez-Bertólez and Dr Oriol Martín-Solé, Consultants in the Department of Paediatric Urology at Hospital Sant Joan de Déu Barcelona (ES), will…
European Institute of Innovation and Technology (EIT) Health’s Catapult Videos On-Demand platform has been launched! The EIT Health Catapult programme showcases carefully selected ventures from all over Europe and actively looking for Seed and Series A investments. The free-of-charge platform which we are bringing to you today, allows to meet the founders behind the best…
The World Duchenne Organization is pleased to announce that thanks to a collaborative initiative driven by their technical partners, FAIR Data Systems in Madrid, a FAIR Training Program will be available online to all those interested in understanding the value and future impact of the FAIR Guiding Principles. This is the outcome of the latest…
Rare Disease International (RDI) has opened the event platform for #SeeRare – the global Rare Disease Day event organized in partnership with the international Rare Disease Day campaign. #SeeRare will take place online on 28 February 2023, at 14.00 CET | 08.00 EST. The event aims to give greater visibility to rare disease groups around…
IRDiRC launches the Call for Members for the four new Task Forces of the 2023 Roadmap. Check out the newly approved Task Forces: Funding Models to Support the Spectrum of Rare Disease Research and Development The overall objective of this Task Force is to identify how different types of funders make decisions about when to fund at…
AFM Téléthon (France) launches a scientific call for proposals for 2023, open both to French and foreign teams. The aim is to support: Fundamental Research and Physiopathology of Diseases of the Neuromuscular System Development of Innovative Therapeutic Approaches for Rare Genetic Diseases More information here (PDF) Along with this call, AFM Téléthon also launches a medical research call in neuromuscular disorders, having…
The 4th eNMD conference will be held on 19-21 October 2023 in Munich. Visit the event’s website to get updated on information that will be incoming: https://enmd-neuromuscular.eu
The European Partnership for Personalised Medicine (EP PerMed) Drafting Group, representing the European Members States group, is launching an open consultation to validate and receive input for the Strategic Research and Innovation Agenda in support for the European Partnership for Personalised Medicine, EP PerMed. The outcome of the online consultation will be considered for the SRIA finalisation (02/2023)…
On 15 and 16 November 2022 the European Commission launched together with ERA-LEARN its first European Partnership Stakeholder Forum. The Forum focused on the review of the first year of partnerships and, in particular, how they can contribute to the twin green and digital transitions, as well as increasing Europe’s resilience. EJP RD Coordinator Daria…