ICPerMed and ERA PerMed published the joint statement « Towards the Implementation of Personalised Medicine in Europe – The Advantage of a European Partnership« . The statement stresses the need for establishing a European Partnership for Personalised Medicine. Already a lot has been achieved by a large number of international, pan-European, national as well as regional activities…
Indian Organisation for Rare Diseases (IORD)’s World Rare Disease Day-2020 That’s the takeaway from IORD conference on ‘Raising the Awareness: Prevention of Rare Diseases’ in Hyderabad, India that summed up the World Rare Disease Day-2020 event. Doctors, survivors, expert speakers, healthcare staff, patients’ organisations, RD patients, researchers, policymakers, RD volunteers, parents and students took part…
March 8th is the International Women Day, EJP RD is pleased to support the global campaign by sharing its support to all women. Gender equality is particularly important in science, where the gap is still present. In the past years, the EU has put in place formal regulations to ensure equal opportunities, however « female…
The Fund wants to support research on rare diseases to better understand the processes (causes and mechanisms) underpinning rare diseases and/or to turn fundamental discoveries into better prevention, diagnosis or treatment of patients. This annual award of 1.000.000 € aims to catalyse the research agenda on rare diseases in Belgium and beyond. The amount…
World Birth Defects Day (WBDD), observed on March 3 each year, unites people and organizations working in the field of birth defects, also known as congenital anomalies, congenital disorders or congenital conditions. There are many types of birth defects and this day recognizes collective voice in raising awareness for all birth defects. In 2010, the…
This year the EJP RD is happy to join the international Rare Disease Day campaign by releasing its own first video! The video celebrates the relevance of the work done by the EJP RD consortium, the contribution of all EJP RD partners has been vital to the process of the development of rare disease ecosystem…
Collaborative research projects are a key aspect of international research, and the biomedical sciences. To respond to ethical issues raised by biomedical research, training on the ethics of research and innovation is crucial. This summer, Uppsala University’s Centre for Research Ethics & Bioethics (CRB) and the Biomedical Research Foundation of the Academy of Athens (BRFAA) are co-organising a…
To mark the occasion of Rare Disease Day 2020, EURORDIS – Rare Diseases Europe holds a policy event at the European Parliament to “Reframe Rare” and discuss areas of action at EU level that can contribute to the integration of people living with a rare disease into society and improve their lives. The idea to…
Today is the day: The 9th edition of the Eurordis Black Pearl Awards event is just a couple of hours away! The EURORDIS Black Pearl Awards is an annual awards ceremony which takes place in Brussels in February to launch the month of Rare Disease Day. Since 2012, EURORDIS-Rare Diseases Europe has organized this event to…
Specialised phenotyping: Mutant mice under inflammatory disease conditions Context and aims of the call In the INFRAFRONTIER2020 specialised phenotyping program, INFRAFRONTIER partner institutions offer the in depth characterisation of mouse mutants for interested biomedical researchers all around the globe – free of charge concerning scientific service and expertise. In this TA call, the Greek INFRAFRONTIER…