PedCRIN Final Event: Fostering International Paediatric Clinical Research

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Paediatric Clinical Research Infrastructure Network (PedCRIN), a project of ECRIN, announces its PedCRIN Final Event on “Fostering International Paediatric Clinical Research” and invites everyone involved in paediatric clinical trials to join the event. The webinar will take place on June 16, 2021 from 09.30 – 13.00 CET. During the 3.5-hour interactive session focused on the challenges of paediatric multinational clinical trials,…

GBT Webinar on Inequalities in Healthcare – Spotlight on Sick Cell Disease Patients in Europe

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Global Blood Therapeutics (GBT) is organizing a European multi-stakeholder roundtable event titled « Addressing Inequalities in Healthcare – Spotlight on Sickle Cell Disease Patients in Europe ». The webinar will take place on May 11, 2021 from 14.30 – 16.00 CET. The session will feature discussions of the health inequalities and challenges that disproportionately impact minority groups across Europe. In particular, the…

Tech4Growth Health Workshop series: Building Impactful Partnerships Between Start-ups – Corporates – Academia

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The Swiss Biotech Association, in collaboration with EFPL Innovation Park and Innosuisse, are organizing a series of Tech4Growth Health workshops as part of their « TFV – Networking Events Series 2021-2024 » program. The event will take place every Monday and Thursday lunch/afternoon on the following dates: May 31, June 3, 7, 10, 14 and July 2 –…

EHDEN 4th Open Call for Data Partners

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The EHDEN Consortium announces its 4th Open call targeted towards data custodians of Electronic Health Records, Claims, Hospital and Registry data across Europe, supporting the mapping of their data to the OMOP common data model to accelerate research and healthcare decision-making. They welcome all applications, but applications from countries not yet (or minimally) represented in…

European Conference on the Diffusion of Genomic Medicine: Health Economics & Policy

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As part of Solve-RD, Solving the unsolved rare diseases, a European project H2020 on genetic research, the Health Economics Team of the Economics Laboratory of Dijon (University of Burgundy) organises the “European Conference on the Diffusion of Genomic Medicine: Health Economics & Policy” from May 26th to 28th, 2021. You will find the programme here. Registration is open here. More…

Call for expression of interest – Data Standards Strategy survey and workshop

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The Big Data Steering Group has launched an initiative to develop a Data Standards Strategy that will enable the Network to more effectively leverage data to deliver evidence in support of benefit-risk decision-making on the development, authorisation and use of medicines.  If you are part of Patients’ & Healthcare Professionals’ organisations or a Learned Societies, the European…

RDCA-DAP Professional Webinar Series: Value of Integrated Data and Analytics in Rare Disease Drug Development

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The Rare Disease Cures Accelerator–Data and Analytics Platform is launching a new webinar series with the goal of sharing with the community examples of the use of rare disease person-level data in drug development and regulatory decision making. The series will feature 1-hour webinars highlighting analyses that have been done in individual disease areas, how…