EPTRI and RESTORE Survey on paediatric Advanced Therapies Medicinal Products (ATMP) expertise

News

Innovative techniques in the biomedical field (such as massive sequencing capacity, gene editing and tissue engineering) have resulted in the development of new unconventional drugs in the Advanced Therapy Medicinal Products (ATMPs) class. In this scenario, the European Paediatric Translational Research Infrastructure (EPTRI) and the EU-funded RESTORE project are collaborating to describe the map of competences available in the framework of the paediatric ATMP research in pan-European…

Genopole Summer School 2021: Bioinformatics and Biostatistical Tools in Medical Genomics

News

Genopole, the oldest and largest biocluster in France, is organising its Summer School 2021 on statistical methodologies and bioinformatics tools used in genomics and metagenomics in the context of a comprehensive approach to pathological mechanisms, targeted towards researchers, engineers, PhD students and post-docs involved in or planning to start their research project in the field of…

Online event on Adult Life & Duchenne

News

The World Duchenne Organization is organizing an online educational event on Adult Life & Duchenne. The free event on September 7 will be accessible for everybody via Zoom, and is available with live Spanish interpretation. Speakers include Prof. Ros Quinlivan, Dr. Jos Hendriksen, Nicoletta Madia, Elizabeth Vroom and Hlawulani Mkhabela. Apart from these, Duchenne adults from…

National Organization for Rare Disorders (NORD) organises Rare Breakthrough Summit 2021

News

The National Organization for Rare Diseases (NORD) is organising its annual NORD Summit 2021, one of the largest multi-stakeholder events in rare disease, bringing together rare disease community stakeholders, including rare disease experts and leaders from patient advocacy groups, government, industry, and academia to discuss the most current and critical topics related to rare diseases…

Better Medicines for Children Conference: Global Paediatric Drug Development Challenges & Solutions

News

The European Forum for Good Clinical Practice (EFGCP) and the Drug Information Association (DIA) are organising the Better Medicines for Children Conference 2021 on the theme of « Global Paediatric Drug Development Challenges and Solutions – The Path Forward ». The fully virtual conference will take place over two days from October 18th – 19th from 11.45 – 18.00 CET. Better Medicines for…

Ubiquitous Pharmacogenomics (U-PGx) Personalized Medicine Symposium

News

The Golden Helix Foundation and the Leiden University Medical Center, both partners of the Ubiquitous Pharmacogenomics (U-PGx) project, are co-organising the Personalized Medicine Symposium 2021. The symposium will take place in Leiden, the Netherlands over two days from October 27th – 28th. This international event is open for clinical pharmacologists, hospital pharmacists, general pharmacists, specialists, general practitioners, medical students, laboratory technicians, regulators, healthcare insurers and…

EATRIS launches survey on Patient Engagement in Academic Research

News

The European Advanced Translational Research Infrastructure in Medicine (EATRIS) together with the European Patients Forum (EPF), the European AIDS Treatment Group and the European Patients Academy (EUPATI) have co-launched a short anonymous survey on Patient Engagement in Academic Research. Targeted primarily at academic researchers, they encourage any academic researcher regardless of their research focus and…

Virtual Congress: Europe Biobank Week 2021

News

The European, Middle Eastern and African Society for Biopreservation and Biobanking (ESBB) and the European Research Infrastructure on Biobanking (BBMRI-ERIC) are jointly organising the Europe Biobank Week 2021 as a Virtual Congress with this year’s theme “Biobanking for our Future – Opportunities Unlocked” representing a unique opportunity to meet representatives in biobanking as well as other…

U.N. Political Forum 2021 High-Level Side Event: Addressing the challenges of persons living with a rare disease

News

The United Nations Political Forum on Sustainable Development (HLPF) is co-organising a High-Level Side Event titled « On the road towards COVID-19 recovery & delivery of the Sustainable Development Goals – Addressing the challenges of persons living with a rare disease as a human rights, sustainable development and equity priority » along with the NGO Committee for…