The Innovative Medicines Initiative (IMI) is organising a series of online live sessions on IMI’s Impact, where key actors will explore the challenges and demonstrate how IMI contributed. The next session will be focused on patient involvement on the 7 October at 14:00-15:30 (CET/Brussels Time). Registration is open here. They will analyse the challenges and…
The European Forum for Good Clinical Practice and the Drug Information Association are organising The Paediatric “Better Medicines for Children” Conference, an annual flagship event providing a unique opportunity to share best practice updates and a truly global outreach. The event will take place on 18-19 October 2021. Registration is open here. This year the…
The International Mouse Phenotyping Consortium (IMPC) is organising a virtual conference titled « Mouse Genetics and Genomic Medicine » to celebrate the occasion of the 10th anniversary of the establishment of the IMPC. The fully virtual conference will take place over two days on September 23rd – 24th. On Day 1 of the conference (September 23rd from 17.35 to 18.00 CET), Dr. Daria…
The National Press Foundation is organising a two-day online workshop entitled « Covering Rare Diseases ». The workshop will take place on September 13th-14th. EJP RD and IRDiRC Scientific Secretariat Coordinator Daria Julkowska along with other IRDiRC members Lucia Monaco (IRDiRC Consortium Assembly Chair), Durhane Wong-Rieger, Gareth Baynam, Samuel Agyei Wiafe, Anne Pariser and Ritu Jain will…
RWE4Decisions, a multi-stakeholder initiative commissioned by the Belgian National Institute of Health, is organising a webinar entitled “Delivering a Health Data Strategy for the European Reference Networks (ERNs): Developing a Shared Vision with All Stakeholders” to discuss what a co-created Health Data Strategy for the ERNs could look like. The webinar will take place on September 29, 2021 from 16.00…
The Professional Society for Health Economics and Outcomes Research (ISPOR) is organising a webinar entitled “Health Preference Research in the Context of Gene Therapy in Rare Diseases” that will be limited to 1000 registered participants on a first-come, first-served basis. The webinar will take place on September 27, 2021 from 16.00 – 17.00 CET. This webinar will present the value…
Economist Events and Ipsen are organising a webinar entitled “Leaving the darkness: Tackling rare bone diseases” featuring the participation of clinical specialists, health policy experts and patient groups. The webinar will take place on September 22, 2021 from 17.00 – 18.00 CET. The webinar will discuss the complex context of rare bone diseases and how care can be re-oriented to…
EuropaBio continues its Advanced Therapies webinar series of events, interviews, and publications with a virtual discussion on avenues for enhancing the access of EU patients to novel biotechnology-derived treatments titled “Treatment without borders: the EU case for equitable patient access to advanced therapies.” The webinar will take place on September 7, 2021 from 16.00 – 17.00 CET. The event will address whether EU…
eureKARE, a company that invests in and supports European early-stage high-risk projects in the field of microbiome and synthetic biology has announced a competition between promising academic projects in synthetic biology across Europe. All European researchers (PhD, postdocs, senior researchers) are invited to participate to the competition. The winner of the competition will get free…
The Centre for Advanced Studies in Biomedical Innovation Law (CeBIL) at the University of Copenhagen and the University of Cambridge’s Centre for Law, Medicine and Life Sciences (LML) are jointly organising the 2021 Annual Symposium on the theme of Orphan Drug Innovation: Needs and Priorities. The event is targeted towards legal,economic, business, medical, and scientific…