Following the successful implementation of three Joint Transnational Calls since 2019, EJP RD is glad to announce the upcoming launch […]
Read MoreIn the context of EJP RD’s ERN Workshops, a hybrid workshop on “contemporary outcome measures in neuromuscular diseases” aimed at understanding the advancement […]
Read MoreIn the context of EJP RD’s ERN Workshops, a face-to-face workshop on “Endocrine cancer: A challenge in adults and children” aimed at giving […]
Read MoreTopic: Anonymisation and pseudonymisation of rare disease patients: legal and technical aspects Date and Time: December 15th, 2021 from 15.00 – 16.00 […]
Read MoreEJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and […]
Read MoreRare Disease Ghana Initiative (RDGI), in partnership with Rare Diseases International (RDI), is organising the first African Summit on Rare […]
Read MoreThe AKU Society, a UK-based charity, has launched a crowdfunding campaign to raise funds for “Leave No Patient Behind – […]
Read MoreThe EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and […]
Read MoreThe Fondazione Gianni Benzi is organizing the XIV Foresight Training Course (FTC) on the theme of “The health emergency: Regulatory […]
Read MoreThe 1st International Conference on Rare Diseases and Paediatric Research is being organized by 95, Rare Alliance Greece together with […]
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