The European Commission has published guidance on the clinical evaluation of orphan medical devices. Orphan devices are medical devices or […]
Read MoreAre you an adolescent aged from 12 to 18 living with arthritis (including rare juvenile idiopathic arthritis, polyarticular juvenile idiopathic […]
Read MoreThe European Conference on Rare Diseases and Orphan Products (ECRD) is the largest, patient-led, rare disease policy-shaping event held in Europe. The […]
Read MoreCheck out the #ECRD2024 comic strip showcasing major milestones from the 1st ECRD to today and beyond!At labor #7, we […]
Read MoreThe International Rare Diseases Research Consortium’s (IRDiRC) Regulatory Scientific Committee (RSC) has two openings for new members who are from […]
Read MoreOn behalf of EURORDIS-Rare Diseases Europe, we would like to thank all of you who attended the 13th EURORDIS Black Pearl Awards, in Brussels […]
Read MoreIRDiRC has just announced the launch of the latest publication titled “Advancing Diagnosis and Research for Rare Genetic Diseases in […]
Read MoreIn a groundbreaking move, the European Union (EU) has announced the initiation of the Joint Action on Integration of ERNs […]
Read MoreIRDiRC is delighted to co-host, together with Hope for Rare Foundation and Fudan University, the Global Rare Diseases Research Symposium & The Second China […]
Read MoreSave the Date for the International Congress on Rare Diseases and Orphan Drugs on February 29th, 2024 (Hybrid -Technopolis City […]
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