The upcoming EJP RD training entitled Biobanking in rare diseases: the Poland experience is now open for registration. The 2-day training will be held on November 28-29th online. The training is dedicated to scientists of biomedical sector who want to learn about biobanking standards in rare disease research.Registration is open until November 10th. Register and…
We are glad to announce the launch of the new MOOC entitled “Introduction to translational research for Rare Diseases” will be available. On this five-week course from the European Joint Programme on Rare Diseases, you’ll explore the therapeutic development process from the unique perspective of rare diseases. You will follow the journey from discovery to…
On October 17th, a new MOOC entitled “Introduction to translational research for Rare Diseases” will be available. On this five-week course from the European Joint Programme on Rare Diseases, you’ll explore the therapeutic development process from the unique perspective of rare diseases. You will follow the journey from discovery to approved treatment, learn how therapeutic…
A new article entitled Identifying obstacles hindering the conduct of academic-sponsored trials for drug repurposing on rare-diseases: an analysis of six use cases has been published on September 15th. This paper, in which EJP RD members participated in, identifies hurdles in the set-up of six multinational clinical trials for drug repurposing, as use cases. Read…
The registration for the Third International Summit on Human Genome Editing is now open. The event will take place on 6-8 March 2023 at the Francis Crick Institute, London UK. Register for free here The Third International Summit on Human Genome Editing will take place on 6-8 March 2023 at the Francis Crick Institute, London…
EJP RD is glad to partner with Alexion’s annual Rare Conversations conference, “Rare Disease Policies: Pioneering the way towards a resilient ecosystem”, that we will partner. The event will reflect on several aspects that may be included in the new legislative framework, trying to answer the question: How to create a resilient rare disease ecosystem for…
EJP RD is glad to announce that the last call for Research Mobility Fellowships is now open until November, 13th, 2022. The call aims to support PhD students, postdocs, and medical doctors in training to undertake scientific visits fostering specialist research training outside their countries of residence. The exchange can be carried out (1) within the same ERN (Full…
The International Rare Diseases Research Consortium (IRDiRC) and the European Joint Programme on Rare Diseases (EJP RD) are jointly organizing a two-day conference on clinical research networks (CRNs) for rare diseases, which will take place on December 1 and 2. The objective of this conference is to gather experts from different continents to increase mutual knowledge…
EJP RD held its annual General Assembly and Consortium Meeting on 13-15 September 2022 in Porto, Portugal. The event gathered over 100 participants from various institutions across Europe and associated countries. It was an opportunity to bring back together EJP RD members to meet in-person. Collaboration, Innovation, Data, Funding & Empowerment are key for the…
EJP RD is delighted to announce an upcoming webinar on « The Statistical Evaluation of Surrogate Endpoints in Clinical Trials » which will take place online, on November 18, 2022, at 16:00 CEST. The webinar will be divided in two parts; a first half of the webinar will be devoted to the in-depth review of surrogate marker…