Happy Rare Disease Day! Watch EJP RD contributors answer the web’s most search questions about rare diseases in a new video that you can find HERE (subtitles available). Like every year, EJP RD is proud to contribute to spreading awareness on Rare Disease Day. Don’t forget to share the video and subscribe to our Youtube channel and to our Twitter to be kept updated on our funding opportunities,…
The EJP RD is glad to invite you to the information webinar organised for potential applicants to the Joint Transnational Call 2021 on “Social Sciences and Humanities Research to Improve Health Care Implementation and Everyday Life of People Living with a Rare Disease”. The webinar will take place online on February 2nd, 2021 3:00pm – 4:30pm CET. REGISTER HERE All interested…
EJP RD is organizing webinars to showcase the resources involved in the programme and address the following: (1) what is this resource, and how is it related to EJP RD ? (2) How can this resource be helpful for clinicians / researchers involved in rare disease studies? and (3) how can this resource be used by the audience? The…
In the context of the EJP RD internal call for innovation projects in clinical trials methodologies in limited populations, that opened on 7th of December 2020 and will close on 3rd of March 2021, an “Information/Networking Event” will be organized on the 25th of January 2021. The meeting will take place online from 15:00 to 18:30. All interested applicants are invited to…
EJP RD is glad to be a part of the organisation of the RE(ACT) Congress and IRDiRC Conference joint online event that will take place on 13-15 January 2021. It aims to bring together scientific leaders, patients, and policy makers to advance research on rare diseases. Patients and patient organisations will share their perspectives and experiences. To obtain your discount, register here before 31st of December. …
The EJP RD is glad to announce its second General Assembly (GA) and Consortium meeting that will take place from 14 to 18 September 2020. Due to Covid-19, the 2020 GA meeting will be held online. The GA meeting will be the perfect occasion to bring together all EJP RD members to have an open discussion on the work…