A funded networking event titled “European Dravet Syndrome Advanced Therapies Meeting (EDSAT)” is being organised so that scientists can share first-hand information […]
Read MoreThe board game FAIRopoly developed by EJP RD illustrates the FAIRification steps followed by the ERNs registries to make their […]
Read MoreAs part of the training activities proposed by EJP RD, an international course entitled “Training for patient representatives and advocates on leadership […]
Read MoreAs part of the training activities proposed by EJP RD, the International Summer School on Rare Disease Registries and FAIRification of […]
Read MoreIn the context of EJP RD’s ERN Workshops, a face-to-face workshop on “Translational research on bone impairment in rare diseases” aimed at giving an […]
Read MoreTo commemorate Rare Disease Day 2022 (February 28th), EJP RD is proud to announce the launch of our Instagram account […]
Read MoreEJP RD’s innovative Rare Diseases Research (RDR) Challenges call in partnership with Fondation Maladies Rare aims at facilitating and funding collaboration […]
Read MoreThe European Joint Programme on Rare Diseases (EJP RD) is proud to announce that EJP RD member Prof. Franz Schaefer […]
Read MoreAs part of the training activities proposed by EJP RD, an online training course on “Training on strategies to foster […]
Read MorePARIS, France and TUCSON, Ariz., U.S., February 1st, 2022: The European Joint Programme on Rare Diseases (EJP RD) announces a collaboration […]
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