Webinar on Implementation of co-funded European Partnerships

News

On 27 April 2023, ERA-LEARN is organizing an online event focused on the implementation of co-funded European Partnerships. The target audience for this event includes coordinators and beneficiaries of co-funded European Partnerships who are looking for additional support in implementing their projects. Main agenda items: Welcome and Introduction Status of European Partnerships Governance and implementation of co-funded European Partnerships…

Empowering Teenagers in Health Research: Join Our Workshop and Learn How to Make a Difference in Biomedical Research and Healthcare Services

EJP RD News

Attention teenagers aged 12-18 with an interest in health, biomedical research, healthcare, and children’s rights! Join our upcoming workshop to become an active contributor in scientific research and improve healthcare services for all patients. 21-23 June 2023Barcelona, SpainDeadline to show interest: 14 May 2023 Learn about drug development, children’s rights, and patient-centered approaches through case…

New session of the MOOC « From Lab to Clinic: Translational Research for Rare Diseases » launching today!

EJP RD News

The new session of the MOOC « From Lab to Clinic: Translational Research for Rare Diseases » has been launched today. Learn the fascinating journey of translating research into treatments for Rare Diseases. With expert guidance, explore drug discovery, clinical trials, regulatory approval, and challenges in this unique field. Gain insights from patients and experts, understand trial…

Online course « From Lab to Clinic: Translational Research for Rare Diseases » launching on April 17th

EJP RD News

Exciting news for researchers, clinicians, and healthcare professionals! The eagerly anticipated MOOC, « From Lab to Clinic: Translational Research for Rare Diseases » is launching on April 17th. This 5-week course offers a unique opportunity to gain insight into the issues, challenges, and opportunities in translating research into treatments for rare disease patients. With just 4 hours…

New training: ERN biological samples in Rare Diseases research: Added value and usefulness

EJP RD News, ERN-Research (ERICA)

A new EJP RD training course called « ERN Biological Samples in Rare Diseases Research » is set to take place on June 12th in Madrid, Spain, aimed at biomedical researchers, medical professionals, and biobank managers. The course will cover the path to follow for exploiting the high value of the ERNs (European Reference Networks) biological samples…

Call for experts: Strategic Advisory Group of Experts on In Vitro Diagnostics 2023 (SAGE IVD)

News

The World Health Organization (WHO) is seeking experts to serve as members of the Strategic Advisory Group of Experts on In Vitro Diagnostics (SAGE IVD). This “Call for Experts” provides information about the advisory group in question, the expert profiles being sought, the process to express interest, and the process of selection. For more information on SAGE IVD: WHO Strategic Advisory…

Translating Research into Innovation: Lessons from 3 Case Studies in Health Partnerships

EJP RD News, News

The European Joint Programme on Rare Diseases, alongside TRANSCAN and the Innovative Health Initiative were selected by ERA LEARN to investigate how partnerships navigate the process of translating research activities into medical and health innovations for the benefit of patients, the European health systems and society. The report is available here. The aim of this…

Duchenne Care Conference 2023

News

The World Duchenne Organization is organising the Duchenne Care Conference 2023. This online conference is taking place on June 7 and 8 from 15:00 – 18:00 CEST. This conference provides a unique opportunity for healthcare professionals and patient organizations around the world to connect and learn from the latest insights on Duchenne care in a…

Solve-RD Public Symposium: The Impact of Solve-RD on Research & Care of Rare Disease Patients

News

Solve-RD, a research project funded by the European Commission for five years (2018-2022), having the ambitious goals set out by the International Rare Diseases Research Consortium (IRDiRC) to deliver diagnostic tests for most rare diseases by 2020, invites all its partners to attend the Solve-RD Final Meeting 2023 in Prague (Czech Republic) or online. The meeting will take place on 24-26 April 2023 and the registration deadline for…