The French Foundation for Rare Diseases is delighted to announce the upcoming opening of a new facilitation window of the MOOC “Diagnosis Rare Diseases: from the clinic to research and back” on October 16th. This update will be available until December 8th, 2023. During this period, expert mentors will be actively present on the platform to answer the…
The French Foundation for Rare Diseases has announced the opening of a new facilitation window of the MOOC From Lab to Clinic: Translational Research for Rare Diseases on October 9th. This update will be available until December 2nd, 2023.In this course, you’ll get to learn from experts about how medicines are developed, tested in clinical trials, approved by regulators, and the…
The French Foundation for Rare Diseases is delighted to announce the upcoming opening of a new facilitation window of the MOOC From Lab to Clinic: Translational Research for Rare Diseases on October 9th. This update will be available until December 2nd 2023. With expert guidance, explore drug discovery, clinical trials, regulatory approval, and challenges in this unique field. Gain insights from patients and…
Join us for a groundbreaking 2-day face-to-face event that promises to revolutionize the world of rare disease research! The European Joint Programme on Rare Diseases proudly presents the culminating training workshop in its series of capacity-building programs on biobanking. The free event will be held on December 13-14, 2023. 📝 Registration Deadline Register here by…
The 2024 edition of the Open Academy Schools will take place in-person on 3-7 June in Barcelona. The face-to-face intensive week of the Open Academy School on Medicines Research & Development (formerly EURORDIS Summer School) and the Open Academy School on Scientific Innovation & Translational Research (formerly EURORDIS Winter School) take place during the same week, incorporating parallel sessions, focusing on School-specific topics, and joint…
We are delighted to share Together4RD’s position statement, which delves into a critical topic: the untapped potential of European Reference Networks (ERNs) in addressing the unmet needs of people living with a rare disease.Find the publication here
Accessible at https://doi.org/10.1177/26330040231188979, the Chrysalis Task Force identified key financial and non-financial factors that make rare disease research and development attractive to companies. More information on the Chrysalis Task Force here: https://irdirc.org/chrysalis-project/ « It was a real pleasure working with such a talented IRDiRC Task Force. We also truly appreciate the critical input provided by the…
Under the Horizon Europe Framework Programme, a new two-stage call for proposals for « Establishing novel approaches to improve clinical trials for rare and ultra-rare diseases » was published on 27 July, 2023. The project generated from the topic should not only develop capacities and capabilities to execute innovative trial designs, but also plan to identify solutions…
Coordinated by Dr Guillaume BASSEZ, Dr Gisèle BONNE and Pr Shahram ATTARIAN, the DIU aims to provide theoretical and practical training in myology, designed to improve the assessment and management of people with neuromuscular pathologies, and to develop clinical and biological research in this field. Please note that teaching is given in French. This session…
Join our advanced online training « Item response models for analysing assessments in rare diseases » Mark your calendar for a remarkable online training experience on 29 September 2023! This FREE advanced-level training is your gateway to exploring the intricate world of statistical modelling and inference. Registration Deadline: Register here by 28 September 2023 at 23:45 p.m.…