In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “EJP RD – ERN Workshop: New Therapeutical Approaches for Inherited Retinal Dystrophies” is being organized by Dr Regina Rodrigo. The in-person event will take place on 27-28 March 2023 at CIPF – Príncipe Felipe Research Center, Eduardo Primo Yúfera, 3, 46012, Valencia, Spain. Registration is open here, and closes…
Five European anti-cancer charities (Fundación científica Asociación Española Contra el Cáncer (Spain); The Anticancer Fund (Belgium); Fondation ARC (France); Kom op tegen Kanker (Belgium); Dutch Cancer Society (The Netherlands)) are joining forces to stimulate international research on rare cancer drug development. The focus of this joint international call, the ATTRACT-Call, is on late phase (2/3) clinical trials on rare cancer drugs.…
IRDiRC’s Therapies Scientific Committee (TSC) would like to broaden the committee membership, to represent the worldwide rare diseases therapies community in its full width, from early innovation towards regulatory approval and therapeutic support of patients. As such, the TSC has three openings for new members, specifically encouraging participants from the following regions: Africa, Asia, Australasia or South America.…
Chiesi has published an article showcasing support towards EJP RD’s RDR Challenges Call. The innovative “Rare Diseases Research (RDR) Challenges” call aims at facilitate and fund collaboration between industry, academia, SMEs, and patient organizations to solve specific research challenges in rare diseases. « As B-Corp certified pharmaceutical company, Chiesi invests in multi-stakeholder collaboration as a crucial pillar…
Do you have an innovative or breakthrough project related to the Duchenne field that you wish to share with the global community? Submit an E-Poster abstract for the 2022 edition of Duchenne Patient Academy. Selected authors will be invited to present their E-Poster during the event taking place on December 1. The poster session will…
The EJP RD Joint Transnational Call, a funding opportunity for research projects, will be launched on December 12th. The aim of the funding opportunity is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with expected impact to use the…
On 15 and 16 November 2022 the European Commission will launch its first European Partnership Stakeholder Forum. The Forum focuses on the review of the first year of partnerships and, in particular, how they can contribute to the twin green and digital transitions, as well as increasing Europe’s resilience. EJP RD Coordinator Daria Julkowska will…
In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “Epidermolysis bullosa: from genes to translation into therapies” is being organized by Prof. Dr. Cristina Has of the University Hospital Freiburg. The in-person event will take place on 23-24 March 2023 in CIBSS – Centre for Integrative Biological Signalling Studies in Freiburg, Germany. Registration is open here, and closes…
We are thrilled to share with you the new EJP RD video produced for ASHG TV which focuses on the value chain: from diagnosis to development of therapies for Rare Diseases. Together, EJP RD Members Dr. Daria Julkowska, Dr. Sonja van Weely, Dr. Ralph Schuster, Anton Ussi, Prof. Franz Schaefer, Dr. Ana Rath, Prof. Rima…
Fondazione Gianni Benzi Onlus is jointly organising with Università degli Studi di Bari Aldo Moro the XV Foresight Training Course “Boosting research and innovation in a changing regulatory framework”. It will run as a hybrid meeting on 15-16 December 2022 in Bari, Italy at Sala Leogrande (Ex Palazzo delle Poste, piazza Cesare Battisti 1). The…