Webinar: Primary Obstructive Megaureter (POM): Predictors of Success and Failure after Balloon Dilatation

ERN-Research (ERICA), News

ERN eUROGEN and ERNICA are organising a 1-hour webinar entitled « Primary Obstructive Megaureter (POM): Predictors of Success and Failure after Balloon Dilatation » on February 22nd, 2023 at 18:00 CET. Registration is open here In this webinar aimed at healthcare professionals, Dr Sonia Pérez-Bertólez and Dr Oriol Martín-Solé, Consultants in the Department of Paediatric Urology at Hospital Sant Joan de Déu Barcelona (ES), will…

EIT Health Catapult Videos On-Demand

News

European Institute of Innovation and Technology (EIT) Health’s Catapult Videos On-Demand platform has been launched! The EIT Health Catapult programme showcases carefully selected ventures from all over Europe and actively looking for Seed and Series A investments. The free-of-charge platform which we are bringing to you today, allows to meet the founders behind the best…

ERICA WP4 Webinar: Essential requirements before thinking about a clinical trial

EJP RD News, ERN-Research (ERICA)

The European Rare Disease Research Coordination and Support Action consortium (ERICA) is organising the WP4 Clinical Trial Support webinar “Essential requirements before thinking about a clinical trial” in collaboration with EJP RD and ERN BOND. This webinar will provide you with an overview of what should be done before starting a clinical trial in a study site.…

#SeeRare – the global Rare Disease Day event

News

Rare Disease International (RDI) has opened the event platform for #SeeRare – the global Rare Disease Day event organized in partnership with the international Rare Disease Day campaign. #SeeRare will take place online on 28 February 2023, at 14.00 CET | 08.00 EST. The event aims to give greater visibility to rare disease groups around…

1st International CTNNB1 Syndrome Conference

EJP RD News, Networking events funded by EJP RD

A networking event, funded by EJP RD’s Networking Support Scheme, is being organised in Madrid, Spain on March 23rd-24th. This unprecedented event for the CTNNB1 community aims to bring together healthcare professionals, industry, families, and patient advocacy organizations working together to raise awareness, accelerate the development of effective treatments and improve the lives of those…

EJP RD Networking Symposium: Complex genetics of inherited arrhythmias

EJP RD News, Networking events funded by EJP RD

This symposium on inherited arrhythmias is funded by the EJP-RD Networking Support Scheme and will take place in Amsterdam in March 2023. Registration and more information here. The meeting will include talks on cutting edge research from some of the world’s leading investigators in this field. It will also include discussions on developing the new…

EJP RD – ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)

EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a workshop entitled “Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)” is being organized by Rīga Stradiņš University. The in-person event, which aims to educate researchers and clinicians on psychological, molecular and administration aspects of HBOC GPS, will take place on 27-28 April 2023 in Riga, Latvia. Registration is open here,…

ERN Webinar: Patients with Trisomy 21 and ARM Versus Patients with ARM Without Fistula

ERN-Research (ERICA)

ERN eUROGEN are organising a webinar dedicated to healthcare professionals and patient groups on Wednesday, 8 February at 18:00 CET. Dr Eva Amerstorfer, Consultant (Department of Pediatric and Adolescent Surgery, University Hospital Graz, AT) and Dr Inbal Samuk, Director of Colorectal Services (Pediatric and Adolescent Surgery Department, Schneider Children’s Medical Center, Petah Tikva, IL) will present this webinar.…

Call for Members : 2023 IRDiRC Task Forces

News

IRDiRC launches the Call for Members for the four new Task Forces of the 2023 Roadmap. Check out the newly approved Task Forces: Funding Models to Support the Spectrum of Rare Disease Research and Development The overall objective of this Task Force is to identify how different types of funders make decisions about when to fund at…