In the context of EJP RD’s ERN Workshops, a face-to-face workshop on “Translational research on bone impairment in rare diseases” aimed at giving an update on translational research on bone impairment in rare diseases and bringing together experts and trainees to facilitate collaborations is being organised by Justine Bacchetta of the Faculty of Medicine of Lyon. The in-person event will take place over…
To commemorate Rare Disease Day 2022 (February 28th), EJP RD is proud to announce the launch of our Instagram account and an exciting social media collaboration with rare disease influencer Prof. Lara Bloom, President and CEO of the Ehlers-Danlos Society. On Rare Disease Day 2022, Prof. Bloom will take over our Instagram account and post…
The European Commission (EC) has adopted the 2022 work programme of the European Innovation Council (EIC), opening funding opportunities worth over €1.7 billion in 2022 for breakthrough innovators to scale up and create new markets. This includes €60.5 million to tackle three Transition Challenges, notably one on the development of RNA-based therapies and diagnostics for…
The dates for the 2022 edition of the Innovation Bootcamp in Rare Diseases (IBRD2022), sponsored by Congress Care, have been announced. The event is targeted towards all professionals involved in the prevention, treatment and diagnosis of rare diseases and orphan drug research and development, including researchers, clinicians, pharma, policy makers and patient representatives. This in-person event will…
The NGO Committee for Rare Diseases, Ågrenska Foundation, Rare Diseases International (RDI), and EURORDIS-Rare Diseases Europe are jointly organising their 2022 Global Rare Disease Day Event on the occasion of Rare Disease Day (February 28th) at the World Expo, Dubai. The event will take place from 07.30 – 13.30 CET (10.30 – 16.30 local time) at…
The European Commission (EC) has launched the 2022 edition of its Horizon Impact Award, a prize dedicated to EU-funded projects whose results have created societal impact across Europe and beyond. Six winners will be chosen, and each will receive €25,000. The contest is open for applications until March 8th. The winners will be announced at…
The UK Royal Society, Academy of Medical Sciences, the US National Academies of Sciences and Medicine and UNESCO-The World Academy of Sciences for the advancement of science in developing countries (TWAS) are jointly organising the Third International Summit on Human Genome Editing in March 2023, postponed from its original date of March 2022. The original dates of March 7th – 9th, 2022 are being used to…
Scientify Research, a Swedish company providing an open, curated and structured research funding database that focuses on aggregating information on funding opportunities across several research areas, has published a curated list of grants and funding opportunities available in the field of rare diseases. The website also collates information about research funders, and users are allowed…
In the framework of the French Presidency of the Council of the European Union (PFUE 2022), and under the high patronage of the French Ministry of Higher Education, Research and Innovation (MESRI), Inserm (French National Institute of Health and Medical Research) is organising a scientific symposium on Rare Diseases. The hybrid conference (in-person for specially invited attendees…
The Chan Zuckerberg Initiative (CZI) is inviting applications from collaborative teams bringing together patient-led rare disease organisations and research teams for 4-year research projects aimed at advancing understanding of the fundamental science of rare diseases across two requests for applications (RFAs): The Patient-Partnered Collaborations for Single-Cell Analysis of Rare Inflammatory Pediatric Disease RFA aims to support the application of single-cell biology…