The Care-for-Rare Foundation at Dr. von Hauner Children’s Hospital, Munich has launched the Care-for-Rare Science Award 2021, a grant of €50,000 aimed at providing scientists the chance to initiate a basic or clinical research project in the field of rare diseases. The call for applications is currently open and will close on July 31, 2021. The award…
Paediatric Clinical Research Infrastructure Network (PedCRIN), a project of ECRIN, announces its PedCRIN Final Event on “Fostering International Paediatric Clinical Research” and invites everyone involved in paediatric clinical trials to join the event. The webinar will take place on June 16, 2021 from 09.30 – 13.00 CET. During the 3.5-hour interactive session focused on the challenges of paediatric multinational clinical trials,…
Global Blood Therapeutics (GBT) is organizing a European multi-stakeholder roundtable event titled « Addressing Inequalities in Healthcare – Spotlight on Sickle Cell Disease Patients in Europe ». The webinar will take place on May 11, 2021 from 14.30 – 16.00 CET. The session will feature discussions of the health inequalities and challenges that disproportionately impact minority groups across Europe. In particular, the…
The Swiss Biotech Association, in collaboration with EFPL Innovation Park and Innosuisse, are organizing a series of Tech4Growth Health workshops as part of their « TFV – Networking Events Series 2021-2024 » program. The event will take place every Monday and Thursday lunch/afternoon on the following dates: May 31, June 3, 7, 10, 14 and July 2 –…
The EHDEN Consortium announces its 4th Open call targeted towards data custodians of Electronic Health Records, Claims, Hospital and Registry data across Europe, supporting the mapping of their data to the OMOP common data model to accelerate research and healthcare decision-making. They welcome all applications, but applications from countries not yet (or minimally) represented in…
EuropaBio invites you for its first webinar in the Advanced Therapies series of events, interviews, and publications titled « Taking health up a gear: Value of advanced therapies. » The webinar will take place on May 11, 2021 from 12.00 – 13.00 CET. The event will discuss how innovation in gene and cell-based medicine can bring a transformative value for patients, with the…
Alexion’s Rare Conversations invites you for its third webinar (Take Three) on Research In Rare Diseases: Specificities and Needs. The webinar will take place on May 5, 2021 from 14.00 – 15.30 CET. The event, in cooperation with BPI, is aimed at discussing how the revision of the OMP Regulation (N° 141/20000), 20 years after…
Share4Rare, in collaboration with the World Duchenne Organization and the John Walton Muscular Dystrophy Research Centre, is hosting a webinar for families who want to join the Share4Rare research pilot. This research project focuses on how being or caring for a person with neuromuscular diseases (NMD) affects learning & work opportunities. The event will take…