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Webinars by Share4Rare

Share4Rare has developed two interesting webinars together with Melanoma Patient Network Europe, Newcastle University, and World Duchenne Organization; both are in April. ‘Online Advocacy – Social Media & Valuable Tools’. The internet has fundamentally altered the way and the speed with which we access information- and that also plays a major role in patient advocacy!…

ECRD will be online!

ECRD 2020 will now take place exclusively online, on 14-15 May. More people than ever before will now be able to participate in ECRD from the safety and comfort of their own home, connecting via an interactive online platform wherever they are in the world. Register for ECRD 2020 online at the new reduced rates.…

ERNs COVID-19: Resources, Recommendations & Support

Here is a list of links to relevant resources and support information developed and provided by several ERNs and the EU aimed at fight the COVID-19 outbreak in a coordinate effort. The list and links provided by the ERNs are constantly updated. COVID-19 Clinical Management Support System (CMSS) launched by the European Commission to support…

EATRIS Response to the Covid-19 pandemic

EATRIS mission is to accelerate the translation of promising scientific discoveries into benefits for patients. The focus of its main activities is on bridging the innovation gap between the lab and the clinic as well as offer services and expertise to increase chances of research to successfully reach patients. The EATRIS infrastructure’s resources are therefore…

INB/ELIXIR-ES nodes and TransBioNet members effort on Covid-19 research

INB/ELIXIR-ES nodes and TransBioNet members effort on Covid-19 research is a collection of databases, public repositories, tools, scientific publications, consortia and research projects of the INB/ELIXIR-ES nodes and TransBioNet members across Spain supporting global SARS-CoV-2 and Covid-19 research and knowledge. In the webpage the following information/links are available and it is updated frequently: DATABASES and…

ELIXIR support to Covid-19 research

ELIXIR provides a range of services that can be used for studying the SARS-CoV-2 coronavirus and the Covid-19 disease. The webpage listed the following topics and it is constantly updated: Access data relevant to COVID-19 Make your data easier to find and share Find software and workflows to analyse your data Find computing resources to…

EMA establishes task force to take quick and coordinated regulatory action related to COVID-19 medicines

As part of its health threat plan activated to fight COVID-19, the Agency has finalised and published the composition and objectives of its COVID-19 EMA pandemic Task Force (COVID-ETF), which assists Member States and the European Commission in dealing with development, authorisation and safety monitoring of therapeutics and vaccines intended for treatment or prevention of COVID-19. The main…

H2020: IF & COFUND calls

The EU has opened yesterday #2 important calls. Info and details are listed here. Individual Fellowships: MSCA-H2020-IF-2020 Objective. The goal of the Individual Fellowships is to enhance the creative and innovative potential of experienced researchers, wishing to diversify their individual competence in terms of skill acquisition through advanced training, international and intersectoral mobility. Individual Fellowships…

BBMRI-ERIC has released COVID-19 specific support

What can biobanks do against COVID-19? Taking care of today’s COVID-19 patients is priority number 1. Researchers will need high quality samples from patients and healthy controls, collected in clinical settings and in an ethical way. BBMRI-ERIC can all help with that. In the past weeks, BBRMI collected information on the resources national nodes and…