The World Duchenne Organization (WDO) is hosting an online Duchenne Care Conference intended for patients, family members, clinicians and others involved in the care of individuals affected by Duchenne and Becker Muscular Dystrophy.
The online conference will take place over four evening sessions of 2.5 hours each on June 1–4, 2021. The conference will provide simultaneous interpretation in various languages.
During the conference, leading Duchenne experts will touch on topics such as respiratory care, nutrition, bone health management, stress dosing steroids, treating behavioural and learning disabilities, caring for younger patients, pain management, female Duchenne carriers, physiotherapy, dealing with gastrointestinal problems, arm function, and exercise.
To participate, please contact your national patient organisation. Patient organisations who are members of the WDO can send details of up to 20 representatives each as conference participants before May 22 to Suzie-Ann Bakker (suzieann.bakker[at]worldduchenne[dot]org).
More information here: https://www.worldduchenne.org/news/duchenne-care-conference-2021/