Action for Rare Disease Empowerment (ARDEnt), a cross-sector coalition 30 UK-based experts in rare diseases, is organizing a webinar on the findings of its Making the Unseen Seen report.
The webinar will take place on May 11, 2021 from 20.00 – 21.00 CET.
The ARDEnt Report reveals the impact of the Covid-19 pandemic on every stage of the rare disease patient journey, from diagnosis to eventual management, and the webinar will focus on the following themes:
- Theme 1: Diagnostic delay
- Theme 2: Health and social care coordination
- Theme 3: Research and drug development, including access to treatment.
More information and registration here: https://www.eventbrite.co.uk/e/making-the-unseen-seen-ardent-report-tickets-151810129183