EURORDIS-Rare Diseases Europe Announces New Chief Executive Officer

  EURORDIS-Rare Diseases Europe proudly announces the appointment of Virginie Bros-Facer, PhD, as its new Chief Executive Officer, starting March 2024. Virginie brings an extensive professional background in rare diseases, scientific research, and patient advocacy, combined with personal insights from her niece’s experience with Congenital Disorders of Glycosylation. EJP RD is proud to have collaborated with…