Save the date: 12th  European Conference on Rare Diseases and Orphan Products (ECRD)

EJP RD News

The 12th edition of the European Conference on Rare Diseases and Orphan Products (ECRD), for which EJP RD is a partner, will take place on 15-16 May 2024, both online and in Brussels! It will be held as an official event under the auspices of the Belgian EU Council Presidency. ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe, aimed at identifying…

Multistakeholder workshop on Patient Registries (hybrid)

News

The European Medicines Agency (EMA) is set to host an event, the « Multistakeholder Workshop on Patient Registries » on February 12-13, 2024. This two-day hybrid workshop promises to delve into the intricacies of patient registries, offering a unique platform for regulators, registry holders, industry professionals, and a broad spectrum of stakeholders to engage in meaningful discussions.…