A new EJP RD training course called « ERN Biological Samples in Rare Diseases Research » is set to take place on June 12th in Madrid, Spain, aimed at biomedical researchers, medical professionals, and biobank managers. The course will cover the path to follow for exploiting the high value of the ERNs (European Reference Networks) biological samples…
The World Health Organization (WHO) is seeking experts to serve as members of the Strategic Advisory Group of Experts on In Vitro Diagnostics (SAGE IVD). This “Call for Experts” provides information about the advisory group in question, the expert profiles being sought, the process to express interest, and the process of selection. For more information on SAGE IVD: WHO Strategic Advisory…
The European Joint Programme on Rare Diseases, alongside TRANSCAN and the Innovative Health Initiative were selected by ERA LEARN to investigate how partnerships navigate the process of translating research activities into medical and health innovations for the benefit of patients, the European health systems and society. The report is available here. The aim of this…
The World Duchenne Organization is organising the Duchenne Care Conference 2023. This online conference is taking place on June 7 and 8 from 15:00 – 18:00 CEST. This conference provides a unique opportunity for healthcare professionals and patient organizations around the world to connect and learn from the latest insights on Duchenne care in a…