Rare Disease International (RDI) has opened the event platform for #SeeRare – the global Rare Disease Day event organized in partnership with the international Rare Disease Day campaign. #SeeRare will take place online on 28 February 2023, at 14.00 CET | 08.00 EST. The event aims to give greater visibility to rare disease groups around…
A networking event, funded by EJP RD’s Networking Support Scheme, is being organised in Madrid, Spain on March 23rd-24th. This unprecedented event for the CTNNB1 community aims to bring together healthcare professionals, industry, families, and patient advocacy organizations working together to raise awareness, accelerate the development of effective treatments and improve the lives of those…
This symposium on inherited arrhythmias is funded by the EJP-RD Networking Support Scheme and will take place in Amsterdam in March 2023. Registration and more information here. The meeting will include talks on cutting edge research from some of the world’s leading investigators in this field. It will also include discussions on developing the new…