Satisfaction Survey for EJP RD services

The European Joint Programme on Rare Diseases (EJP RD) - Work Package 19 (WP19: “Facilitating partnerships and accelerating translation for higher patient impact”, aims to support the RD community to more effectively translate high quality research into high impact interventions for the RD patient community. For that, WP19 offers three main services:  Mentoring for translational research…

Training on Strategies to Foster Solutions of Undiagnosed Rare Disease Cases: Registration Open

As part of the training activities proposed by EJP RD, an 3-day training course on “Training on strategies to foster solutions of undiagnosed rare disease cases” is being organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP RD partners. The training will be held in Rome, Italy on 3-5 April 2023. Through the presentation of sample…