The Swiss Biotech Association, in collaboration with EFPL Innovation Park and Innosuisse, are organizing a series of Tech4Growth Health workshops as part of their « TFV – Networking Events Series 2021-2024 » program. The event will take place every Monday and Thursday lunch/afternoon on the following dates: May 31, June 3, 7, 10, 14 and July 2 –…
The EHDEN Consortium announces its 4th Open call targeted towards data custodians of Electronic Health Records, Claims, Hospital and Registry data across Europe, supporting the mapping of their data to the OMOP common data model to accelerate research and healthcare decision-making. They welcome all applications, but applications from countries not yet (or minimally) represented in…
EuropaBio invites you for its first webinar in the Advanced Therapies series of events, interviews, and publications titled « Taking health up a gear: Value of advanced therapies. » The webinar will take place on May 11, 2021 from 12.00 – 13.00 CET. The event will discuss how innovation in gene and cell-based medicine can bring a transformative value for patients, with the…
Alexion’s Rare Conversations invites you for its third webinar (Take Three) on Research In Rare Diseases: Specificities and Needs. The webinar will take place on May 5, 2021 from 14.00 – 15.30 CET. The event, in cooperation with BPI, is aimed at discussing how the revision of the OMP Regulation (N° 141/20000), 20 years after…
Share4Rare, in collaboration with the World Duchenne Organization and the John Walton Muscular Dystrophy Research Centre, is hosting a webinar for families who want to join the Share4Rare research pilot. This research project focuses on how being or caring for a person with neuromuscular diseases (NMD) affects learning & work opportunities. The event will take…
As part of Solve-RD, Solving the unsolved rare diseases, a European project H2020 on genetic research, the Health Economics Team of the Economics Laboratory of Dijon (University of Burgundy) organises the “European Conference on the Diffusion of Genomic Medicine: Health Economics & Policy” from May 26th to 28th, 2021. You will find the programme here. Registration is open here. More…
What are your wishes and needs for networking? And how is this changed due to the COVID-19 pandemic? We are eager to hear your view! Complete the survey here to help us improve the Networking Support Scheme, the EJP RD funding opportunity for networking. Please note: if you are a principal applicant or an evaluator…
The European Joint Programme on Rare Diseases has launched an academic education course on rare diseases research topics. The development of the courses is coordinated by the Foundation for Rare Diseases, one of the EJP RD partners. The first course will address research issues related to diagnosis in the rare diseases context. More information Join…
The Big Data Steering Group has launched an initiative to develop a Data Standards Strategy that will enable the Network to more effectively leverage data to deliver evidence in support of benefit-risk decision-making on the development, authorisation and use of medicines. If you are part of Patients’ & Healthcare Professionals’ organisations or a Learned Societies, the European…
The Rare Disease Cures Accelerator–Data and Analytics Platform is launching a new webinar series with the goal of sharing with the community examples of the use of rare disease person-level data in drug development and regulatory decision making. The series will feature 1-hour webinars highlighting analyses that have been done in individual disease areas, how…