Two-Day Online Workshop on Covering Rare Diseases

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The National Press Foundation is organising a two-day online workshop entitled « Covering Rare Diseases ». The workshop will take place on September 13th-14th. EJP RD and IRDiRC Scientific Secretariat Coordinator Daria Julkowska along with other IRDiRC members Lucia Monaco (IRDiRC Consortium Assembly Chair), Durhane Wong-Rieger, Gareth Baynam, Samuel Agyei Wiafe, Anne Pariser and Ritu Jain will…

RWE4Decisions Webinar: Delivering a Health Data Strategy for the European Reference Networks (ERNs)

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RWE4Decisions, a multi-stakeholder initiative commissioned by the Belgian National Institute of Health, is organising a webinar entitled “Delivering a Health Data Strategy for the European Reference Networks (ERNs): Developing a Shared Vision with All Stakeholders” to discuss what a co-created Health Data Strategy for the ERNs could look like. The webinar will take place on September 29, 2021 from 16.00…