The Share4Rare Consortium is organising a webinar to share the findings and outputs of four years of the Share4Rare project, setting the base for the next generation of data sharing in rare diseases. The webinar will take place on June 8th from 15.00 – 18.00 CET. In this online event targeted towards rare disease patients and their families, patient…
EURORDIS is pleased to announce that nominations for the EURORDIS Black Pearl Awards 2022 are now open. The Awards are presented to patient advocates and organisations, policy makers, scientists, companies, and media in recognition of their exceptional achievements and outstanding commitment to the rare disease cause. NOMINATIONS: Just like every year, you can nominate any individual or organisation from anywhere in the world (including yourself and/or your own organisation) whose…
The European Federation of Pharmaceutical Industries and Associations (EFPIA) is hosting a multi-stakeholder virtual workshop titled « Accelerating Adoption of Complex Clinical Trials in Europe and Beyond » aimed at developing shared solutions for the use of complex clinical trials to optimise drug development in Europe. The online event will take place over two days: October 5th from 14.00 – 19.00 CET and October 6th from 14.00…