In the Innovative Medicine Initiative (IMI2) report regarding rare diseases recently published. In the report, beside the several relevant recommendations on different topics such as digital solutions, innovative technologies, and a more explicit value framework for orphan drugs, a list of common challenges, and a note about public private partnership. In addition, EJP RD as…
The European Research and Innovation Days will take place on 22, 23, and 24 September 2020. Research and innovation will be key to ensure a transition to a sustainable, inclusive, and resilient post-corona society. This year’s format will provide an opportunity to connect, take stock of research and innovation achievements in the global response to…
VASCERN, The European Reference Network for Rare Multisystemic Vascular Diseases, has partnered with the Marfan Foundation to co-lead the first E3 International Summit: Educating, Empowering, and Enriching Our Community! The online event will provide unique access to presentations and live question and answer sessions (in 6 languages) on Marfan, Loeys-Dietz, vascular Ehlers-Danlos syndrome (vEDS), Stickler syndrome, and related conditions.…