octobre 4, 2019

EURORDIS webinar: « How to use results of data sharing survey »

Take part in an interactive webinar to discuss the results of the first large scale quantitative survey on patients’ preferences in data protection/ sharing and how you can use the results in your advocacy.  This interactive webinar will be led by with Sandra Courbier, Rare Barometer leader and Virginie-Bros Facer, EURORDIS Research Director, the agenda…

ERN webinar: « Clinical Features of Ataxia by Dr. Bart van de Warrenburg »

Joint webinar series by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN) on 5 November 2019 at 3 pm CET. The speaker is Dr. Bart van de Warrenburg, a neurologist from the Radboud University Medical Centre in Nijmegen, the Netherlands. He is an…