The first call for new members to join existing 24 ERNs has been launched TODAY, 30 of September 2019 until 30 of November 2019. HOW TO APPLY TO BECOME A MEMBER OF AN ERN?The membership application process will involve several steps: Review the information that is included on the Commission webpage related to the European Reference Networks and…
For the first time ever, in a UN official political declaration document was stated that persons with rare diseases deserve to be part of the universal health coverage (UHC). The EJP RD is very enthusiastic about this decisive turning point for the entire rare disease community and even more motivated to make a difference in…
This is a free ELIXIR Innovation and SME Forum. The Innovation and SME Forum on the 10-11th of October with a focus on “distributed data analysis – the {health} data train” in Utrecht is open to researchers working in the data driven life-science sector, large and small companies that develop services for data management and…
The EJP RD Coordinator, Dr. Daria Julkowska, participated to this first annual policy event of the European Commission, bringing together stakeholders to debate and shape the future research and innovation landscape. Dr. Julkowska was part of the « Tackling Rare diseases » session together with Anne Paoletti (French Research Ministry, France), Andrzej Rys (European Commission, DG SANTE,…