Survey on online training needs in the context of rare diseases research
EJP-RD is a multifaceted program aimed at supporting Rare Disease (RD) research in every possible way. This include funding of primary research, networking and training capacities as well as the development and application of tools and methodologies facilitating the generation, analysis, and dissemination of data all the way from genetic/translational research to clinical trials. Dr. Roseline Favresse &…