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Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

Follow us on social media!

Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Free workshops!

For personnel affiliated to institutions of the European Reference Networks

Latest News

New publication – The European joint programme on rare diseases: building the rare diseases research ecosystem

3 juillet 2024

We are thrilled to announce the publication of a new article highlighting the…

New guidance on the clinical evaluation of orphan medical devicespublished

25 juin 2024

The European Commission has published guidance on the clinical evaluation of orphan medical…

Join the paediatric Patient Expert Group (PEG)!

21 juin 2024

Are you an adolescent aged from 12 to 18 living with arthritis (including…

Upcoming Events

05

Mar

2025

RE(ACT) Congress and IRDiRC Conference 2025

SAVE THE DATE: Welcome to the pinnacle event in rare diseases research – the RE(ACT) Congress and IRDiRC Conference 2025, held jointly by the BLACKSWAN Foundation and the International Rare Diseases Research Consortium (IRDiRC). From…

  • 09:00 - 17:00 (7 mars 2025)
  • Brussels, Belgium
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS