![](https://www.ejprarediseases.org/wp-content/uploads/2024/02/Dashboard.jpg)
![](https://www.ejprarediseases.org/wp-content/uploads/2024/02/Dashboard.jpg)
READ MORE
Ipsum has been the industry's standard.
Theme For 2018
EXPLORE THE DASHBOARD
![](https://www.ejprarediseases.org/wp-content/uploads/2024/02/transformative-stories.jpg)
![](https://www.ejprarediseases.org/wp-content/uploads/2024/02/transformative-stories.jpg)
READ MORE
Ipsum has been the industry's standard.
Theme For 2018
WATCH THE VIDEO
![](https://www.ejprarediseases.org/wp-content/uploads/2024/02/Drug-repurposing-for-rare-progress-and-opportunities-for-the-rare-disease-community.jpg)
![](https://www.ejprarediseases.org/wp-content/uploads/2024/02/Drug-repurposing-for-rare-progress-and-opportunities-for-the-rare-disease-community.jpg)
READ MORE
Ipsum has been the industry's standard.
Theme For 2018
READ MORE
Welcome to EJP RD
The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.
Follow us on social media!
Free workshops!
For personnel affiliated to institutions of the European Reference Networks
Latest News
New publication – The European joint programme on rare diseases: building the rare diseases research ecosystem
We are thrilled to announce the publication of a new article highlighting the…
New guidance on the clinical evaluation of orphan medical devicespublished
The European Commission has published guidance on the clinical evaluation of orphan medical…
Join the paediatric Patient Expert Group (PEG)!
Are you an adolescent aged from 12 to 18 living with arthritis (including…
Upcoming Events
05
Mar
2025RE(ACT) Congress and IRDiRC Conference 2025
SAVE THE DATE: Welcome to the pinnacle event in rare diseases research – the RE(ACT) Congress and IRDiRC Conference 2025, held jointly by the BLACKSWAN Foundation and the International Rare Diseases Research Consortium (IRDiRC). From…
- 09:00 - 17:00 (7 mars 2025)
- Brussels, Belgium